Lauren – and My Most Important Post Ever

It has taken me about four days to write this post.  I start.  I stop.  My eyes well up.  Then I start again.  Please read the whole thing.

And yes, I will end up asking you to make a contribution to help fund research to beat childhood cancer.

About Lauren

Lauren is 10 years old.  I have never met her, but outside of my own daughter, I think that she is the prettiest little girl in the world.  On March 4, 2005, this beautiful little girl was diagnosed with Langerhan’s Cell Histiocytosis/Ensophillic granuloma.  It is every parent’s worst nightmare to have a sick child, but when you hear scary words like “chemotherapy” and “survival rates” as a parent, it is beyond my ability to process.  My own story is not important, but I spent plenty a day in the waiting area of the Lombardi Cancer Institute in Washington, DC watching the looks of anguished parents as they carried in their children whose withered bodies were unable to move themselves.

Lauren’s mom and dad joined the CarePages site (an online support group – you have to join the site) in 2005, and as of this writing, there are 609 postings – chronicling disagnoses, treatments, illnesses, operations, WAY too much time spent in hospitals.  And unspoken anguish.  Ten year-old children (like my own son) should be out playing, running, jumping, giggling.  Skinning their knees.  NOT being hooked up to machines, poked with needles and spending hours in the car going to and from doctor’s appointments. IT JUST IS NOT RIGHT.

I “met” Lauren’s mom, Heather, online more than two years ago when I decided to join a St. Baldrick’s Team.  I chose to sponsor Lauren at random, since she and my son are about the same age. The premise of St Baldrick’s is simple:  I raise money that goes to “…most brilliant childhood cancer research experts in the world to find cures and improve the quality of life for patients and survivors.” I raise money, show up in an Irish pub in DC and get my head shaved.  I am almost ashamed at how little I do compared to the enormity of that parents of childhood cancer victims – and the children themselves – face every day.

The Unspeakable

It is hard to find words to describe her, but Lauren’s mom, Heather, is strong and determined – but in ways that someone should never be tested. On December 13, 2007, Heather’s husband – and Danielle and Lauren’s daddy – George – was killed in an automobile accident.  Imagine police knocking on the door.  Having to tell two little girls that their daddy has gone to heaven –  right before Christmas.  Heather has endured the loss of her husband and partner in Lauren’s care while managing her daughter’s illness and attempting to provide a sense of normalcy both for Lauren and Danielle.  From everything that Heather has told me, George was a strong man, and one who would always know what to do.  Two years ago, when I did St. Baldrick’s, I held a picture of the family in lap because I wanted to honor all of them, but also wanted George to be there in spirit.

My Pitch

A child’s life should carefree, fully of laughing and playing, but Lauren’s short life has also been full of ER visits, chemo and the loss of her daddy – things that many people could not endure in a lifetime, let alone ten short years.  I wish — more than just about anything — that I could bring back George, Heather’s husband and Lauren and Danielle’s daddy.  I wish that I could take away Lauren’s illness and that of any other childhood cancer victim.  I can’t.

What I can do is to use my own skill sets and determination to raise money to fight this.  To hopefully add to the cadre of online supporters that  the family has.

So for those of you who follow this, I am literally begging you:  please consider giving a donation to St. Baldrick’s.  If you are not in a position to donate, then please share post this with your friends or re-tweet it.  I have set a pretty aggressive fund raising goal based upon my own passion.

None of us can change the past, but with a few tears, determination, courage, and yes, funding, we can change the future.

Please give.




  1. Sunaina Bhatnagar Says: February 10, 2010 at 6:36 am

    This is a great cause – Thank you for bringing awareness to it.

  2. Mark Story Says: February 10, 2010 at 6:38 am

    It is a good cause. I just wish that I could wave a magiv wand and make it go away. I can’t, which is frustrating, so this is the best I can do.

    Thanks for reading and commenting.


  3. This is a fantastic cause! Unfortunately, because these diseases are so rare there is very little government sponsored research. The majority of the research that does occur is made posble by friends like you.

    You can learn more about this disease by going to the website of the Histiocytosis Association of America (


  4. Aimee Saldivar Says: February 10, 2010 at 10:19 pm

    The other day I was told I was evangelical about my cause and urged everyone to sign up for the cause I believed it. The power of communications not only has the power to create a “call to action” but it also has a powerful way to touch someone’s heart. I, too, have gone through keeping the hope alive with treacherous cancer news. I can only say that Faith is the best way to keep one’s chin up during rough times. My personal motto is that “tough times don’t laugh but tough people do.” Believe me, it has gotten me through some really, really rough times in my life and has elevated me to this point. I don’t have much financial contribution but I do have some super emotional advice to give. I hope you can pass it along. You are awesome for believing in this for them! That’s why I love ya prof!!!

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